This Brutiful Life

One of the hardest parts of living alongside an invisible complex chronic illness is the number of decisions that I need to make every second of every day without a road map. I live alongside a level of uncertainty that would take most people out. Robert Groysman, MD, recently asked his online community to describe… Read more

Physical Health:I am continuing to try to figure out my next steps on this health journey. I officially ended my relationship with my former main practitioner. I didn’t want to stop working with her, because she cared more than any other medical practitioner I have had in the last 8 years. However, I knew that… Read more

My life is absurd on even the best of days. I often pause and wonder if I am on Candid Camera. Most people would not be able to live alongside the amount of bullshit I deal with on a regular basis. In fact, the people in my inner circle are continually shocked by the details… Read more

Physical Health:I am continuing to try to figure out my next steps on this health journey. I had a 40-minute initial consultation with a new doctor two weeks ago to determine if he is a good fit for my situation. Prior to the initial consultation, I uploaded the items this doctor requested from me: my… Read more

Physical Health:There is not much new here to report. I did start wearing a smart watch to track some health data. To absolutely no one’s surprise — and right on schedule 🤣 — I developed a rash on my skin underneath the watch. It is a little difficult to see in this image, but this… Read more

Physical Health:Nothing new to share here. I will share more when I know more. Home Building Process:Things are slowly happening. 🤣 Emotional Health:My husband and I celebrated our 24th wedding anniversary recently. We obviously don’t have many ways to celebrate right now, so we just hung out and relaxed. As we were reflecting on this… Read more